Items related to Starting and Sustaining Genetic Support Groups
This book is a guide to genetic support groups--what they are, how to begin one, how to keep an existing group operating and successful. Because a support group may be started, run, and joined by genetics professionals or laypeople, the text contains information usable by a range of readers.
The book opens with a brief discussion of why people seek self-help organizations in general and genetic support groups in particular. The bulk of the text then explains how to organize a genetic support group (getting started, finding a leader), how to sustain the group (developing educational materials and newsletters, conducting a meeting, fund-raising), and how to organize peer support training programs. The authors present examples of existing groups' experiences, sample budgets and news releases, tables and checklists, and other specific information to guide readers.
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About the Author:
Review:
Joan O. Weiss, M.S.W., is executive director of the Alliance of Genetic Support Groups in Chevy Chase, Maryland. Jayne S. Mackta is executive director of the New Jersey Association for Biomedical Research in Elizabeth, New Jersey.
"Programming, fundraising, networking with researchers, and communicating by Internet are just some of the useful topics covered in this highly informative book. Anyone reading Starting and Sustaining Genetic Support Groups from cover to cover will have the knowledge necessary to both start and maintain an effective support group." -- Wendy R. Uhlmann, M.S., Genetic Counselor, Division of Molecular Medicine and Genetics, University of Michigan
"About this title" may belong to another edition of this title.
- PublisherThe Johns Hopkins University Press
- Publication date1996
- ISBN 10 0801850231
- ISBN 13 9780801850233
- BindingHardcover
- Edition number1
- Number of pages152
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